Living With Hemophilia/Living With Hemophilia

Your Answers: The Worst Hemophilia Advice (Infographic)

Posted on November 13, 2016

Feel better informed on haemophilia and get real support from your community.

We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and you took the time to respond.

What did we learn? From the unconcerned ("He will grow out of it") to the plain unhelpful ("Is it contagious?"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.

Some of the most common answers we heard:

He will grow out of it
Is it contagious?
Just be more active
It could be worse
He's fine though, right?
Just don't worry

Everyone's situation is different and not all of these apply to each person. Tell us: What advice about hemophilia do YOU wish people would stop telling you?

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People often say it's just "thin blood" and that it will get better with time, as if it's not a serious condition. But in reality, hemophilia is a difficult disease that affects every part of our… read more